Tag Archives: chronic pain

Day 2535: Flares, or Holy !@#$%^&* Shit, Batman!

Chronic illnesses are not necessarily linear, as in Monday is better than Friday [or worse], or 2003 was better than 2013, an up, or down, progression with logical stopping points and an endpoint. Autoimmune diseases especially are prone to fluctuations that … Continue reading

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Repeat: Chronic Pain ≠ Opiate/”Drug” Addiction

Every fucking day. Every fucking day 1-100 sources, individuals, reports tell me and others like me with chronic conditions that come with daily, unrelenting pain that we, the pain sufferers, are The Reason young [and not-so-young, but let’s be honest—only “the … Continue reading

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Day 2460: “But What Do You DO?”

At the gym I go to, the time of day I go, I am 15-20 years older than the instructors and 10-20-30 years younger than the [mostly] women in class. And most of them don’t use a cane/walking stick like … Continue reading

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30 Things You May Not Know About My Invisible Illness

1. The illness I live with is: ankylosing spondylitis [see posts here, here, and here], fibromyalgia [about me, in general].† 2. I was diagnosed with it in the year: FM: 2009. AS: 2014.‡ 3. But I had symptoms since: AS: probably … Continue reading

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50

Age was never a central or peripheral concern for me in the way it was “supposed” to be. I was always youngest in the class, younger than my friends and peers, but between the ages of 12 and 20, I looked older … Continue reading

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Day 2316: Enthesitis and Peripheral Joint Synovitis

Enthesitis…is the main cause of the pain, stiffness, and limited range of motion in the spine experienced by AS patients. Enthesitis often presents as swelling over the inflamed area, with patients reporting that the affected area is tender to the … Continue reading

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2311

Day 2311 of daily, much of it severe, pain from AS. It started like most do: I’m half-awake, half-falling asleep for 2 or so hours, turning or changing position every 15-20 minutes to move off one sharp pain, throbbing, stabbing, shooting, or … Continue reading

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“inflammatory arthritis” + “pain management” = Tylenol?!?

Inflammatory arthritis [IA], an autoimmune condition, includes rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis. Recommendation 2 Paracetamol is recommended for the treatment of persistent pain in patients with IA. Data from 12 short-term randomized controlled trials (RCTs) at high risk of bias … Continue reading

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“Allowing people to suffer with unmanaged pain is immoral and unethical”

Consumer Pain Advocacy Task Force (CPATF) Who We Are & What We Believe Formed in 2014, the CPATF is a coalition of 16 consumer organizations working to improve the well-being of those living with pain. With decades of combined advocacy … Continue reading

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Chronic Pain Is Not Criminal (Really!); A Better Way to End Addiction No One Wants to Use

My chronic pain isn’t a crime. Boston Globe, 2/3/15. HT: Jenni Prokopy at ChronicBabe FB feed My latest pain contract, presented as a requirement for obtaining care, included a demand that I appear, whenever ordered, before any practitioner in the … Continue reading

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