Tag Archives: ankylosing spondylitis (AS)

April is Spondylitis Awareness Month

I’m “lucky” enough to be “aware” all the damn time. And it is enlightening to see how common this “rare” disease is. What you also can do is look for ways to support those you know with spondyloarthritis, chronic pain … Continue reading

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Bit(ch) 25: “seek out a pain management doctor to get your pain levels under control”

The article‘s fairly good. The focus is rheumatoid arthritis/RA, but I’m used to that. This stopped me cold: If your rheumatologist won’t prescribe pain medications, seek out a pain management doctor to get your pain levels under control.  And find … Continue reading

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Day 2559: Award-Winning AS Video

Good job but short shrift on the non-spinal symptoms and -itises. Ankylosing Spondylitis Video Awarded a 2015 Digital Health Award Ankylosing Spondylitis Video: link

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Day 2535: Flares, or Holy !@#$%^&* Shit, Batman!

Chronic illnesses are not necessarily linear, as in Monday is better than Friday [or worse], or 2003 was better than 2013, an up, or down, progression with logical stopping points and an endpoint. Autoimmune diseases especially are prone to fluctuations that … Continue reading

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Day 2460: “But What Do You DO?”

At the gym I go to, the time of day I go, I am 15-20 years older than the instructors and 10-20-30 years younger than the [mostly] women in class. And most of them don’t use a cane/walking stick like … Continue reading

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30 Things You May Not Know About My Invisible Illness

1. The illness I live with is: ankylosing spondylitis [see posts here, here, and here], fibromyalgia [about me, in general].† 2. I was diagnosed with it in the year: FM: 2009. AS: 2014.‡ 3. But I had symptoms since: AS: probably … Continue reading

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50

Age was never a central or peripheral concern for me in the way it was “supposed” to be. I was always youngest in the class, younger than my friends and peers, but between the ages of 12 and 20, I looked older … Continue reading

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Day 2316: Enthesitis and Peripheral Joint Synovitis

Enthesitis…is the main cause of the pain, stiffness, and limited range of motion in the spine experienced by AS patients. Enthesitis often presents as swelling over the inflamed area, with patients reporting that the affected area is tender to the … Continue reading

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2311

Day 2311 of daily, much of it severe, pain from AS. It started like most do: I’m half-awake, half-falling asleep for 2 or so hours, turning or changing position every 15-20 minutes to move off one sharp pain, throbbing, stabbing, shooting, or … Continue reading

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Ankylosing Spondylitis: Myths from Drugs.com

If your rheumatologist or GP spouts any of this nonsense, look for another doctor; if you have no other options, arm yourself with research and bring a friend to your appointment for moral support and backup. There are many doctors, … Continue reading

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