Category Archives: About a Bitch

50

Age was never a central or peripheral concern for me in the way it was “supposed” to be. I was always youngest in the class, younger than my friends and peers, but between the ages of 12 and 20, I looked older … Continue reading

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Day 2316: Enthesitis and Peripheral Joint Synovitis

Enthesitis…is the main cause of the pain, stiffness, and limited range of motion in the spine experienced by AS patients. Enthesitis often presents as swelling over the inflamed area, with patients reporting that the affected area is tender to the … Continue reading

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2311

Day 2311 of daily, much of it severe, pain from AS. It started like most do: I’m half-awake, half-falling asleep for 2 or so hours, turning or changing position every 15-20 minutes to move off one sharp pain, throbbing, stabbing, shooting, or … Continue reading

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“inflammatory arthritis” + “pain management” = Tylenol?!?

Inflammatory arthritis [IA], an autoimmune condition, includes rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis. Recommendation 2 Paracetamol is recommended for the treatment of persistent pain in patients with IA. Data from 12 short-term randomized controlled trials (RCTs) at high risk of bias … Continue reading

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National Eating Disorders Awareness Week 2015

National Eating Disorders Awareness Week 2015: The Importance Of An Early Intervention: Signs of disordered eating aren’t always obvious, Health reported. Subtle insecurities, excessive exercise, and feeling shy or self-conscious about eating in public are all warning signs a loved … Continue reading

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Yes/No

Yes, you may have seen me at some parades, especially during the day the first weekend and the second Saturday.  No, I am not “feeling better.” “Feeling better” is a fucking tease. AS in general is fairly miserable. Even if … Continue reading

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“Allowing people to suffer with unmanaged pain is immoral and unethical”

Consumer Pain Advocacy Task Force (CPATF) Who We Are & What We Believe Formed in 2014, the CPATF is a coalition of 16 consumer organizations working to improve the well-being of those living with pain. With decades of combined advocacy … Continue reading

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Chronic Pain Is Not Criminal (Really!); A Better Way to End Addiction No One Wants to Use

My chronic pain isn’t a crime. Boston Globe, 2/3/15. HT: Jenni Prokopy at ChronicBabe FB feed My latest pain contract, presented as a requirement for obtaining care, included a demand that I appear, whenever ordered, before any practitioner in the … Continue reading

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Ankylosing Spondylitis: Myths from Drugs.com

If your rheumatologist or GP spouts any of this nonsense, look for another doctor; if you have no other options, arm yourself with research and bring a friend to your appointment for moral support and backup. There are many doctors, … Continue reading

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Bit(ch) 21: That I-Survived Spidey Sense

At one point yesterday, halfway through a sentence, handing over a bolt cutter, my Spidey sense went off—because of a mix up, I was alone in the house with 2 crews of working men, about 7-8 in all, 1 fairly well … Continue reading

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